Veem
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Posts: 12,230
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Post by Veem on Nov 8, 2023 9:13:06 GMT 1
I wish you well with your recovery Sizewell and thank you for passing on your CPAP experience.
Since having the fabric mask I am far more comfortable at night. However, I am still troubled throughout much of the day by my nose running continuously and bouts of severe sneezing particularly during the morning. Do you know if this is a common reaction to the use of the machine?
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Post by sw31girl on Nov 10, 2023 9:21:43 GMT 1
Sorry to hear of your circumstances- it doesn’t sound easy at all. OH has a CPAP machine which is supplied by SOS Oygen as well. They are very helpful and we’ve been with them for several years now. OH has severe sleep apnea and stopped breathing over 35 times in the overnight test so it’s a necessity for him and has made his life a lot better since he’s had it.
I wondered if your health needs meant that you were eligible to be classed as a long duration type of illness as that may provide access to more support. Other forum members may be able to provide more clarity on this,
My father was in a similar position to you as he needed oxygen full time - I guess it didn't help that he was still smoking while using the oxygen treatment at the same time. After a little while he adapted to his life needing full time oxygen and started to become more mobile again. The doctors stressed that he must contact them if he was having further breathing problems, not leaving it thinking it would go away, as it could worsen his illness and damage his already weakened lungs.
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Post by sw31girl on Nov 10, 2023 9:24:53 GMT 1
Sometimes you have to up the humidity in the cpap machines
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Veem
Member
Posts: 12,230
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Post by Veem on Nov 10, 2023 9:39:14 GMT 1
Thanks for relating your experience sw31girl. Under what circumstances and in what way does it help to increase the humidity levels?
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Post by sw31girl on Nov 10, 2023 9:50:10 GMT 1
His cpap machine has a small water container that he keeps regularly topped up. I think SOS set up the humidity level and then adjusted it a couple times after their first couple of visits. After that they discussed with him if he was having any more issues and when he said he was now ok so they decided it was the right level of humidity for him. I can’t remember if the initial problem was a dry nose or a dry throat.
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Veem
Member
Posts: 12,230
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Post by Veem on Nov 10, 2023 9:56:33 GMT 1
My machine is probably the same. I certainly don't have a dry nose or a dry throat. My problem is the opposite - a constantly runny nose and violent sneezes.  The technician is back for a further visit next week so I'll have a word with him. |
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Post by sw31girl on Nov 10, 2023 9:58:11 GMT 1
That sounds more like an allergy response or sinusitis.
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Post by Sizewell on Nov 10, 2023 11:30:41 GMT 1
The small water containers need regular cleaning as the heat generated underneath them causes a calcium buildup in the container. I used to leave my water container soaking in a bowl of hot tap water and white vinegar to remove the calcium.
Also if you use a silicon mask, wash them with a mild odourless liquid soap to remove any grease buildup which then gives a better seal and stops any air leakage when using them overnight.
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Post by houpla on Nov 10, 2023 19:25:42 GMT 1
My machine is probably the same. I certainly don't have a dry nose or a dry throat. My problem is the opposite - a constantly runny nose and violent sneezes. The technician is back for a further visit next week so I'll have a word with him. I managed to combine both initially  Bunged-up nose, cold-like symptoms but a dry mouth and throat. I was assured that it was a lack of humidity. Since the machine was changed to a Resmed with humidifier, and set to the 'Auto' humidity setting, no more problems. I wonder if you'd find this forum useful, Veem? It's a bit 'pushy' but lots of useful and reassuring exchanges about CPAPs on there....https://membre.carenity.com/forum/apnee-du-sommeil-70 The main page might also have a section on oxygen dependent problems. |
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Veem
Member
Posts: 12,230
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Post by Veem on Nov 11, 2023 17:51:03 GMT 1
Today I decided to have a little Google and found out that my runny nose and violent sneezing are very common among CPAP newbies. Evidently, there are certain nasal sprays which can help, so I shall have to have a discussion with one of the helpful local pharmacists to see if they can suggest anything. Today has been the worst day of all as I've got through almost an entire box of tissues and am surprised I haven't broken a rib with all the severe sneezing. I decided to use the ambulatory CPAP machine in the house today as that is set to give 3L per minute of oxygen as opposed to the large night-time machine which is set for 1L/pm. But my nose was too blocked to breathe in through and the machine seems to be designed only to give any oxygen when I can breathe clearly via my nose, so I was getting no oxygen at all. I'll perhaps apply for Rudolf's job and give him a Christmas off.  |
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Post by limousinlady on Nov 11, 2023 19:03:38 GMT 1
Oh Veem, I have been away from the Forum for over a week, so have just caught up on your troubles. Wishing you well. I have no experience on what you are going through and coming to terms with but if you need anything don't be afraid to ask, as we are not too far away.
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The technician is back for a further visit next week so I'll have a word with him.
Bunged-up nose, cold-like symptoms but a dry mouth and throat. I was assured that it was a lack of humidity. Since the machine was changed to a Resmed with humidifier, and set to the 'Auto' humidity setting, no more problems. I wonder if you'd find this forum useful, Veem? It's a bit 'pushy' but lots of useful and reassuring exchanges about CPAPs on there....https://membre.carenity.com/forum/apnee-du-sommeil-70 The main page might also have a section on oxygen dependent problems.
