Nifty
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Post by Nifty on Nov 8, 2021 12:41:41 GMT 1
I only became aware of it a few days ago.
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Deleted
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Post by Deleted on Nov 8, 2021 12:53:22 GMT 1
And you didn’t mention your concerns when they rang to alter your treatment? Any changes can alter things , as you are not a professional in the field,you cannot say no way
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Nifty
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Post by Nifty on Nov 8, 2021 13:12:27 GMT 1
No. I thought that it would complicate matters further I agree with your second point.. I could but am not going to do a Cortés.
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Post by mangetout on Nov 8, 2021 13:15:07 GMT 1
Chemo is a lot less brutal these days, Where do you get that from?
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Post by mangetout on Nov 8, 2021 20:43:24 GMT 1
Hi Nifty. My oh has gone through what you are experiencing. Horrible, but you will make it trust me. Having said that my oh has just been re-diagnosed with cancer of the oesophagus after 7 years cancer free. Just about to start treatment, like you are. If we can help you in any way pm us. Good luck mate.
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Nifty
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Post by Nifty on Nov 9, 2021 11:20:42 GMT 1
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Nifty
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Posts: 4,969
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Post by Nifty on Dec 11, 2021 9:16:54 GMT 1
Two days and I am due to go for another shot of centrage or whatever they call it. I have put on about 7 kilos and my BMI is probably just above the norm. I will have a go at recalculating it when I get up. I have been doing a bit of walking but there has been quite a bit of rain lately which put the kybosh on that diversion. The only problem with walking is that I sometimes get the message that my other hip needs replacing. At this rate I will be exceeding what it cost to rebuild Steve Austin. Believe it or not, there is some not so bad news from Lake Woebegone consumer.healthday.com/encyclopedia/cancer-8/mis-cancer-news-102/chemotherapy-and-side-effects-648006.htmlactually BMI seems to be average, if not slightly below the norm at 24.5.
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FFS
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As usual, in front of my laptop when I'm here
Posts: 2,797
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Laine ?
Dec 11, 2021 11:12:43 GMT 1
Post by FFS on Dec 11, 2021 11:12:43 GMT 1
Nifty, your link above seems to give a fairly comprehensive guide to what might happen during chemotherapy, but as everyone is different, some will suffer more or less than as described.
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Nifty
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Posts: 4,969
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Laine ?
Dec 11, 2021 11:38:05 GMT 1
Post by Nifty on Dec 11, 2021 11:38:05 GMT 1
I have been a bit tardy in finding the last link that I posted. It strikes me that every case is different. It concerned me, to put it politely, that I have not seen my enologist who gave me a great deal of faith that I was being managed by the right people. Instead, the hang-up that I am experiencing was instigated by what looked like somebody who had barely left school and could answer none of my questions, therefore, I lost the confidence that was momentarily established.
on the one hand I am told of the imperative of swift action, and, on the other, I am told to go through the ‘ centrage ‘ (?) procedure again because I have had two crowns fitted to my upper teeth. which, the way I see it can not be linked to the site of the tumour that I had removed. Meanwhile, I am concerned about something that I feel in my throat that could be the scars from the surgery, or something else. something else that could be healing, or growing on its own accord.
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Post by limousinlady on Dec 12, 2021 8:49:07 GMT 1
That's not good news. I hope that you get some positive action/information soon. Bon courage!
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Nifty
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Post by Nifty on Dec 12, 2021 9:00:56 GMT 1
On Monday I will just just smile and nod. Obviously, I can’t do both during the procedure so I will just keep my fingers crossed instead.
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Nifty
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Posts: 4,969
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Post by Nifty on Dec 14, 2021 11:29:54 GMT 1
Yesterday, afternoon thank goodness, I went to Tarbes in order to undergo the markage procedure again, so I thought…. It involves a taxi ride that normally takes about half an hour or so. The taxi turned up at our gaff an hour before my appointment. All went well en route and I was able to converse with the friendly driver, which I like to do as I like to get as much French conversation in as is practicable. All went well, until the vehicle in front of us, a school coach, stopped. It was about ten minutes before we could continue with our journey. We went on for about another hundred meters and the bus stopped again and we were rather stuck. It dawned upon me that I would probably be late for my appointment. After another ten minutes or so we were able to move on and it was revealed that the the hold- up had been due to foursage (sp) or whatever they call hedge trimming and cutting the grass on the verges of the road. I did notice that while we were waiting scarcely any traffic from the other direction passed us and everybody that was on some sort of schedule, may have benefited if the management of the workmen had had a review of the traffic control timings used. My driver did not seem in the least concerned, so, I thought, why should I be? Arrived at the clinic about twenty minutes late. Instead of the normal queuing procedures that I had been used to my driver lead me to a wide corridor with about eight seats in it, half of which were interdite to use because of anti-covid measures. We waited about another quarter of an hour with several other patients (one of who was a lady who had the thinnest legs that I have ever seen on a woman) before I was called in to the scanner. I was greatly relieved to see the presence of the doctor to that I could ask him some questions. I was a bit annoyed with myself because I had left my computer at home due to a bit of tension that arose with OH, as is sometimes does in times of stress. Inwas quite pleased with myself that I managed to remember what I wanted to ask him and did so. Here is an edited copy of what I had written as an aid memoir, or, to leave him a message in case he was not present at the time of my appointment.
FAO Dr.
I am writing this note to you as, unfortunately, I did not get to see you the when I was scheduled to commence my treatment last month.
I would like you to explain to me how having two crowns on upper teeth can alter the correlation between the reference point previously tattooed on my chest and the sites of the left tonsil, + Luette + ganglionnairere removed by Dr. at Mont de Marsan on 25/8/21.
I have been lead to believe that speed of action can be crucial and have been very worried and have lost a lot of the previous belief that I had that I am in the best possible hands.
I hope that it is possible for me to see you ASAP to reassure me.
Also to update the schedule that you kindly wrote out for me
Yours sincerely Nifty
The Dr. Explained that before administering the treatment it was essential that my dental problems were sorted out for clinical reasons. He did go into them, but, to be honest, I can not remember all he told me. I was somewhat surprised at the fluidity of his response, my confidence in him was somewhat restored, but, there are still lingering doubts in my mind, basically because I have several versions written down by TPTB of what is supposed to be the course my treatment would follow. The dates and times have already been changed several times, and, I wonder, why I was not made aware of tooth problem at the outset. I might have saved me a lot of worry. It is not as if the hospital has not been in contact with the dentist as I remember my dentist telling me that he had been in contact with the hospital over a month ago.
I am a bit confused about what was actually done in the scanning room. I had to take a box containing the product that is used to mark the sites where cancerous cells are to show up on the scan. They took this off of me and then asked me to take shirt and shoes off and lie on the scanner table and fitted me with the mask that had been made previously and strapped me in position and I was instructed not to move while they did the business. At this time scenes from old Frankenstein movies were being replayed to my mind’s eye and I found it difficult not to laugh. I was wondering when they were going to inject me with the marker product that I had brought with me. I was scanned for a very much shorter time than I had been previously and then was told that I could get up from the scanner. Still curious about why I had been asked to take the marker product and it had not been used I asked. I think that I was told that it was not necessary as traces from previous scans were still detectable. Afterwards I was debriefed, in spite of the fact that I had put my vest and shirt back on, in as much as I was given instructions at to the next part of the procedure. In spite of my driver telling me that after he had delivered me he had to go and do another job, he remained at the clinic for the duration of my treatment and took me halfway home to a pre- arranged location where I was transferred to another car, driven by the boss of the company, a lovely lady who I am getting to know quite well. I told her about the magnetiseur that I met on the reserve a few days ago. She lives locally, as does he and I wondered if she knew him. Negative. It transpired that she was into homeopathy. It may have been a mistake for me to comment that I thought that most mainstream medicine did not seem to go along with the principles of homeopathic medicine.
I feel ok presently, though, I am still getting to grips with the uncertainty of everything. How much it is my own fault for misunderstanding, or, whether it is down to the PTB not having their act together as much as they would like to think, is difficult to know. Time will tell. Maybe……
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Post by mangetout on Dec 18, 2021 14:55:47 GMT 1
Nifty, if they are using a Truebeam machine to do your radiotherapy, then the second scan is likely to measure your breathing pattern. The machine works to the rhythm. At least that's what's my husbands 2nd scan was for.
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Nifty
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Posts: 4,969
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Laine ?
Dec 20, 2021 16:59:18 GMT 1
Post by Nifty on Dec 20, 2021 16:59:18 GMT 1
@ Mt. I forgot to take special note. Plenty of time yet. One hopes. Edit. On reflection, that seems to fit with my recollection of events.
11.05. Attente Saturn. Marzet, Pau
So, it begins, again. This morning we had a lot to do, We got a telephone call that my appointment time had been brought forward and OH immediately went into 75% Stress Mode. I am a bit sensitive to these times as it has a direct bearing on my ability to do things. I can not even think straight because of the barrage of pointless ‘What if’ worries of conjecture that I am bombarded with that are impossible to do anything about at the time and concern a point in the future. This point could be rommorrow, next week or it half an hour. It doesn’t seem to matter, it is illusory and rarely imperative that whatever the problem seems to be, needs direct and immediate attention. In oh’s mind, it sometimes seems, as if the world is ending tomorrow. The boss of the taxi firm had called to inform us that she would be collecting me early as she was incorporating another patient on the same journey. This was enough to trigger a near panick, apparently, because it had the possibility of invalidating the pre-arranged appointment with the nurse to call in order to give me a blood sample, presumably, so that the results could be used to give TPTB a baseline to compute my therapeutic schedule from. + there was more to it than that, two old friends were due to call in order to take advantage of a rendezvous with a supplier of provisions not generally available that OH has an order with.
The friends arrived and were instructed to sit down and make themselves comfortable, though, not in the special vibrating chair that OH brought specifically for her use, in this case was reserved for me to sit on while the nurse that was due to arrive took samples of my blood. The nurse arrived ten minutes later I sat in the chair (vibrator switched off) and chatted with the old friends, one being considerably older than the other, while oh prepared their coffee. Older friend, who is a bit of a fanatic on older films, made some comment about a video link that I had used to reply to his e-mail enquiring about how my treatment was going.This was in spite of the fact that I had sent him the latter half of, this explanatory clip the previous day.
Warning. Do not play this video link if you could be upset by my warped perspective on life.
I noticed that the taxi had arrived and it was time for me to leave
Confusion at clinic Marzet, but, I am pleased to report that the mission was accomplished without any physical discomfort.
13.00 arrive back home
Upon my return my oh enquiring how things had gone, I think the first words I had said was that there was much confusion on my part, because everything had changed. Then, I explained what had happened and OH asked ‘What about the other appointment ? ‘ I explained that I knew nothing and the next step, afaiwc was what was written in the piece of paper that I had just shown her and to the taxi driver who was the boss of the company that was used to transport me to all of my appointments. I watched the curve on oh’s lips change from a straight line to the shape of an inverted U ( to be sure ) and detected that the pitch and volume on her voice went up considerably, as she asked me about ‘ the other appointment’. ‘What other appointment’ I asked. ‘ The consultation with the Dr. ‘ says she.
I had to admit that I did not know, but, assured her that it was all written down on the piece of paper that I handed to her. She snatched the piece of paper up and went through the motions of reading it and then went harping on in a loud voice, ( this was in spite of the moderation that I witnessed just a few days previously when, at last, after she had had some hearing aids fitted) ‘ I told you…… (and, to be honest, I can’t remember what else I might have said)
Then after some time she cooled down a bit and went shopping. Over lunch I returned to writing this log and review the morning. Taking note of what was written on the piece of paper and card that I had handed to oh as I did so.
Now, I do not consider myself to have a wit, or a temper sharper than a serpents tooth, but for the life of me, cannot see what is so hard to understand about a slip (of paper) marked - Voter prochain rendez-vous est fix’s’
21/12 Consultation 2. Seance de radiotherapie 1. 14.45
Upon reevaluating the situation I am questioning my sanity as well as oh’s
By my understanding tptb are well aware of the consultation by the fact that bit is marked on the memo and events will take there prescribed course….
We shall see……. Maybe.
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Nifty
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Laine ?
Dec 21, 2021 19:51:55 GMT 1
Post by Nifty on Dec 21, 2021 19:51:55 GMT 1
Consultation 2 is tomorrow morning after my first shot of chemo.
Maybe. I was under the impression that it was today.
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